Okay well we just got home from the hospital. Trystyn was taking really shallow breaths yesterday morning and it scared me to death. I ended up calling 911 and we took an ambulance to the nearest hospital. They later transferred us to St. Louis Children's Hospital because they wanted to monitor her overnight as she had another episode in the emergency room. Of course she didn't have another episode all night and she is doing just great now. They gave her an EEG and an Echo cardiogram for her heart because at the time it was beating 158 bpm at rest where it should be more in the range of the 130's. Both of those tests came back just great. Really it is extremely nice to know that she has no issues with her heart. They did increase her acid reflux medicine from 3.5 mls 2x a day to 5 mls 2x a day. Apparently, she had outgrown the dose that she was on.
Needless to say, I am exhausted. There is always very little sleep to be had at a hospital. Not only are the chairs in the rooms absolutely horrible for sleeping in, but they come in every 2 hours to check your childs vitals. Believe me I know that this is completely necessary, but it really doesn't help out the "try to get some sleep" statement that everybody tells you when something bad happens.
Rain was extremely glad to see us both at home again. He was really worried about Trystyn last night and was asking my mother, she kept him overnight, if Trystyn was okay. How sweet is that? It is also really sad that my 4 1/2 year old son has to know all about going to the hospital.
Well, on Tuesday night I was at a Parent Meeting that we have at the Delta Gamma Center and there is a couple there that adopted a special needs child and were still so in the dark about the equipment that is available. So it got me to thinking about adding a page to this site about that. I will try to get that ASAP.
Goodnight.
Whew. Hang in there. Wishing the best for you all.
Posted by: Martin | February 27, 2009 at 09:46 AM