Everyone needs sleep right? So why is that my daughter, who will be 2 on Sunday, does not ever sleep through the night? I found out from our Neurologist that a lot of kids like Trystyn have the same issue. Apparently, because of the brain damage their brains do not produce enough Melatonin. This is what regulates your sleep cycle naturally in your brain. We have started giving her Melatonin at night. This works great if all you are wanting is for your child to fall asleep fast, not if you are wanting her to stay asleep through out the night. I wish i could figure out something else that was herbal to give her to get her stay asleep.
Really, though I have learned to live on the 4 to 5 hours of interrupted sleep that I am getting. But goodness, I am tired all the time. Plus, how can you be mad at her when at 2:00 am she is smiling at you so big, babbling and kicking her legs like okay mom let's play. I mean I know I am partial but, she really is so cute. Luckily for me our 4 year old sleeps through the night and I don't have both of them up smiling at me. But, if anyone out there knows or has any suggestions, if you would please be so kind as to email me that would be great.
A new Squiggles Stander came to us about a month ago, man oh man, I do love that thing. The company that you get equipment through here apparently ordered it by mistake and got my insurance to pay for it, all $6,800.00 of it. I am not complaining because it is way better then the Giraffe that we were borrowing.
Trystyn has a really sensitive head, she hates having her hair done, but her head is really ticklish. The other day she grabbed her ear for the first time and was moving her fingers around on her head and making herself laugh. I tell ya it is so true that it really is the little things that are just so awesome. Honestly, that statement is true for our "Typically Developing" child and our not so "Typically Developing" child.
We also got a new Speech Therapist and I am very excited to have her. She told me that she will have Trystyn using a communication device by the time she is 3. YIPPEE!!!! I guess when you have kids you really are just waiting for the day when they can start to communicate with you so you don't have to play the guessing game anymore. This was true for me with our son Rain. So, the thought of Trystyn being able to finally tell me what she wants will be awesome. I can't wait for that day to come. I think I am even more anxious for it because I thought it never would.
Trystyn is now really starting to feel the things that are given to her. She is really playing with her hands a lot. This is exciting because it gives me hope that maybe she really is just a year and a half behind and will in her own time figure it all out. The Neurologist states that she is really at like a 5 month old level and she is hoping the same thing that Trystyn will just continue to move forward. Like last week during her Physical Therapy session she sat up on her own for 40 seconds. I know that doesn't seem like a lot, but in my world it is like a lifetime. It seems that every little thing she does that is in the slightest bit new or she is doing it on her own, like the sitting, I am applauding her and making such a commotion about it that Rain, our 4 year old son, is now doing it too. You should see her smile when all of this is going on. I have to believe in my heart that she truly does understand what we are making such a fuss about.
On a side note, I have decided to start talking about other stuff in my life then just Trystyn. Trystyn really is a healthy child and there is so much more going on in my world or head as the case may be. I am going to end this on that note. Please feel free to email me your thoughts or questions.
Recent Comments