Well Trystyn had an upper GI done last week to see how bad her Acid Reflux is and needless to say it was bad. My Pediatrician spoke with a Pediatric Surgeon at Childrens Hospital and we went to see him on Tuesday. The result is that on August 20th Trystyn will be having a Nissen Fundoaplication and a feeding tube will be put in at the same time. The Nissen is a procedure that takes the Fundo muscle and wraps it around the opening to the stomach to make the opening smaller. This will help with the acid reflux, to the point that in about six months we will be able to ween her off the acid reflux medicine that she is now taking and then she will be medicine free.
Apparently me pediatrician was more worried about her feeding issues then she let on to me because Trystyn will be having a feeding tube put in at the same time. This will allow her to be able to eat all of the things that she currently doesn't get with only drinking Pediasure. Trystyn will still be able to eat by mouth do she will still be working with an OT to help her with this. Trystyn will have to be in the hospital for three days because they don't just start feeding her normally right after the surgery and they will need to make sure that she is back up to her normal amount of feeds before sending her home.
I am really doing okay with this, but maybe I should wait and say that. I guess I already pretty much new that she was going to end up with a feeding tube because she is 2 years old and is just not figuring out the whole eating regular food by mouth thing. This will be her first major surgery. She had Strabismus surgery on her eyes but they didn't have to cut her open for that. So needless to say my stomach is in a knot about the surgery. Really I just hate the thought of having to spend three days in the hospital. Ugh it's like being back when she was in the PICU.
I have been explaining all of this to Rain, because he will have to stay with family while I am at the hospital. Plus the fact that he will have to stop tickling her belly and start being easier with he after she has the surgery. I told him that he can tickle all he wants untill she has the surgery next week and he is taking full advantage of that.
Rain starts Kindergarten tomorrow and he is really excited. Other than that it's just business as usuall.
Carrie
Comments