It has been sometime since Trystyn's surgery and I would have to say that I am so glad that I did it. Her acid reflux has disappeared and she is finally getting the nutrition that she needs through her feeding tube. It has taken us some time to get her back up to 6 ounce feedings and these are still going in over a two hour time period. But we will continue working on getting that down to a shorter time frame. But all in all it is going well.
Otherwise life is just going along. Definitely sometimes feel like my life is going "to hell in a hand basket". It just seems like when things get going okay then something else falls apart. Anyway, don't really want to get into it because I know my family reads this blog. Sooooo UGH.
Health wise everyone is doing great. Trystyn has her transition meeting on November 9th, in just two short weeks. This is where we will discuss her transition from First Steps into the School System. We shall see how this progresses.
Nothing really new to report - well there is but I will have to wait and talk to the shrink about that.
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